Disney-themed funeral for little boy born with genetic mutation
Noah Cox-Lee, aged five, spent most of his life in and out of hospital.
The life of a little boy who never stopped smiling has been celebrated at a Disney-themed funeral.
Noah Cox-Lee, aged five, was born with a genetic mutation and spent most of his life in and out of hospital with the rare neurological condition FOXG1 syndrome, his mother Channell Cox-Lee said.
“Even with all that going on there wasn’t a day that he didn’t smile,” said Mrs Cox-Lee, 27, of Basildon, Essex.
He died on May 17.
Noah was a fan of Disney cartoons – with his favourites including Moana, Cars, Stitch and Encanto – and Disney was the theme for his funeral on Friday.
Scores of bikers provided an escort to the funeral cortege, after word spread on social media, with members of the Thurrock Bikers group accompanying the hearse to Basildon Crematorium.
Many of the almost 200 riders donned fancy dress, with one as Sulley from Monsters Inc, a Spiderman and a Batman among the colourful collection of fictional favourites.
“Honestly, it’s absolutely amazing,” she said.
“We’re so appreciative of everyone getting involved.
“Being our little boy, you want to give him the world.
“The fact is we can, and everyone’s come together to give him that.
“For everyone to come together and celebrate what he was, no matter what he went through he was always smiling through it.
“Sometimes it puts it in perspective.
“You can be having such a bad day over something so little, but he was going through so much and yet he never let it affect him.”
She said that Noah was in a wheelchair and had “such low muscle tone he couldn’t move his body, he couldn’t walk, he couldn’t hold his head, he couldn’t sit up”.
“He was fed completely through a peg,” she said.
“He couldn’t take anything orally.
“He suffered with gastro issues, with swallowing issues, his vision was affected as well.
“I think that’s where his love of Disney came from because of the bright colours.
“The music, the songs, anything like that.
“If he didn’t have his Disney or something on the TV that he wanted he would basically start mumbling and making noises until you did put it on for him.”
She said his favourites were “basically all the musicals”.
“He was such a delight,” said Mrs Cox-Lee.
“He would just smile and it would brighten up your day.”
