Pride of Guernsey: 'Truly an inspiration to others'
INSPIRATIONAL Jonah Gillingham has kept his sense of humour, which has helped his family to be brave and to fight the rare disease that he is suffering from.
The 17-year-old has overcome everything that has been thrown at him, which is why he has been nominated for the College of Further Education-sponsored Overcoming Adversity Award.
He was diagnosed with a rare disease, atypical haemolytic uraemic syndrome, last year after surviving leukaemia in June.
The medicine to treat it, Eculizumab, costs £300,000 a year.
Health and Social Services funded a 12-week 'rescue remedy' of the medicine, which expired on 31 December, but a request to overturn the decision not to extend the treatment was denied.
Jonah's mother Sonia, one of those who nominated him, said how he has remained upbeat and positive.
'He was the strength in our family when we found it all too much to deal with and he gave us the hope to continue the fight.'
His grandmother, Jenny Falconer, said: 'He never complained and kept his sense of humour – which really helped us, his family, to be brave and fight this too. We are incredibly proud of him.'
Michaela Fallaize, who has helped with fundraising for Jonah, also praised him.
'He is truly an inspiration to others.'
Mrs Gillingham said that Jonah represents his charity, Helping Jonah - Helping Others, at all events where possible and hopes to help others in the future should he no longer need the medication.
He also set up a video blog to help others going through or facing the same situation and as a way to keep in contact with both of his sisters while he is away from home.
